The following was written by Stephen D… As you would imagine, I have given this a bit of thought and if I were only to give one tip/piece of advice, it would be: “Keep an IBD journal/diary.” Granted I am a bit of a compulsive note taker, but keeping an IBD journal allows me to […]
Tag Archives: illness
Every Little Tip Helps: Thank you Victoria!
The following was written by Victoria Marie… I am aware it sounds like an odd tip but I avoid bending, stretching and carrying heavy things. I find if I spend the day bending in half, picking things up off the floor I will feel really awful the next day so I limit this as much […]
We Advocate For What We Need(ed)
Most advocates are advocates for a reason. They are a wealth of knowledge and experience and usually have incredible passion for the fight. They want to use what they have been through to help others. The majority of people who are advocating for a disease or a cause do so with only the best intentions. […]
We all Need to Have an Experimental Phase
When I switched therapists after needing a new perspective, within ten minutes of my appointment with her, she said I needed to be in an “experimental phase” for a little while. I needed to stop searching for my path and get out there and try new things, get an idea of what I like, what […]
One quote; two separate thoughts
Throughout my illness, my dad was the one I usually went to when I needed to cry. He was more emotional than my mom. My mom took care of the more “behind the scenes” part of things like dealing with insurance, making doctors’ appointments, etc. As the years went on and my disease continued to […]