***the following was written while in tears, my computer crashed making me lose half the document initially, and now I don’t have anything in me to add hyperlinks and other things I normally would given the only way I can write on this blog right now is from a mobile device.*** { trying to be […]
Tag Archives: colectomy
Why Am I Doing Work For a Company Whose Drug Failed Me?
I went into my first surgery at the age of 15, at 125 pounds and other than ulcerative colitis, I was generally healthy. This wasn’t done when I had been sick for months and months, was severely underweight, or anything like that. I went into this surgery as healthy as a person who needs to […]
12 Years After My Colon Was Removed…
I was just looking through my blog and realized I have never wrote a post about today’s monumental day. Twelve years ago today, I had my colon removed in an effort to “cure” my ulcerative colitis. I can’t believe how naive my parents and I all were but ya know what? I wouldn’t have had […]
Another Reason Why The “Cure” Word Is Dangerous
If you follow me on twitter (@JournalingIBD) or facebook, you’ll see that I have been pretty driven to have The Crohn’s Colitis Foundation of America (and then hopefully the organization in Canada, CCFA) to remove the word “cure” from their website when it comes to ulcerative colitis. The website says the following about ulcerative colitis: “In one-quarter to […]
Can Ulcerative Colitis Be Cured?
When I first saw how the Crohns Colitis Foundation of America was advocating that the removal of a persons’ large intestine was a cure for ulcerative colitis, I thought it was absurd but it didn’t really bother me too much. When I see advocates using the phrase “Crohns disease and IBD” instead of “Crohns disease […]