With most chronic illnesses, having a good relationship with your doctor is hugely important but for patients with Crohns disease or ulcerative colitis, I believe it to be exacerbated. The reason for this as I see it is because there is so much unpredictability in this disease, no concrete way to go in terms of […]
Tag Archives: central line
Picc Lines and Central Lines
When I went to visit Damon, the 9 year old boy who had an ostomy, in the hospital last Sunday, the issue of a picc line or central line came up. When I asked how he was sleeping the response from his moms was so incredibly familiar. They told me that every time the door […]
How Do You Define “(Major) Surgery?”

One of the questions that I have a hard time answering and struggle with is what actually constitutes a major surgery. I know this is something that is different for everyone so why am I even talking about this you ask? Well to be honest this is something that has always bothered me when speaking […]
Day 5: Health Activists Soapbox

We are now into day 5 of National Health Blog Post Month and the prompt for the day is “Health Activists Soapbox.” Having spent almost 350 nights at Mt. Sinai hospital, I have come across every situation, every absurdity, and every different kind of nurse, doctor and technician that you can imagine. Often my family […]
How do you know when you’re fighting a losing battle?
Knowing when to keep fighting or let something go has always been a difficult concept for me. This is the case in many areas of my life but especially when I was fighting so hard to have a life without an ileostomy. Whenever I would second guess my decision to try having kock pouch surgery, […]