Tag Archives: CCFA

Day 4: Sharing Resources


The prompt for day 4 of Health Activist Writer’s Month Challenge is to create a “care package” filled with the best resources someone who is newly diagnosed can use to advocate for themselves or a loved one. When I was first diagnosed with ulcerative colitis, I was so bogged down with information that I found […]

IBD is SO Complex

I hosted an informal chat on Tuesday night for fellow IBDers with two of my friends, Sara and Jaime, and there were so many interesting things that were brought to the table that night. One thing in particular that I found interesting and a bit shocking was the fact that the majority of people who […]

Response to the new CCFA AD from a Parent, thoughts??

This is a comment from a parent in reaction to the post I wrote “We React to the New CCFA Ad Campaign” (http://keepingthingsinsideisbadformyhealth.wordpress.com/2013/01/10/we-react-to-the-new-ccfa-ad-campaign/) I found this very interesting because while inflammatory bowel disease IS NOT JUST ABOUT THE BATHROOM, what makes living with ulcerative colitis or crohns disease so difficult is really the bathroom part […]