***the following was written while in tears, my computer crashed making me lose half the document initially, and now I don’t have anything in me to add hyperlinks and other things I normally would given the only way I can write on this blog right now is from a mobile device.*** { trying to be […]
Tag Archives: CCFA
Ulcerative Colitis Patients/Caregivers: I need your help
I have an idea for a new campaign and I would love your help and input. Just so ya know, emailing me at Marisa.IBD@gmail.com is the best way to reach me and also easier for me to have people’s thoughts and stories in one place. Please Read The Following Before Proceeding… I know there is […]
Another Reason Why The “Cure” Word Is Dangerous
If you follow me on twitter (@JournalingIBD) or facebook, you’ll see that I have been pretty driven to have The Crohn’s Colitis Foundation of America (and then hopefully the organization in Canada, CCFA) to remove the word “cure” from their website when it comes to ulcerative colitis. The website says the following about ulcerative colitis: “In one-quarter to […]
“How Many More?” ~Sharon Saeed
I saw that someone in our community passed away from a status on facebook over the weekend but honestly wanted to brush past it since it was too much to deal with at that time. I find that I need to keep somewhat of a distance from some of the things I hear about daily […]
Can Ulcerative Colitis Be Cured?
When I first saw how the Crohns Colitis Foundation of America was advocating that the removal of a persons’ large intestine was a cure for ulcerative colitis, I thought it was absurd but it didn’t really bother me too much. When I see advocates using the phrase “Crohns disease and IBD” instead of “Crohns disease […]