Sharing Bad Days on Social Media

I posted this on social media this morning

The response I got was huge and I enormously appreciate every one of your comments, support and love. When I say you guys get me through the dark times, I really mean that. 

I go back and forth about whether I should even be sharing things on Instagram, Facebook and/or Twitter because I’m not in the best place. I don’t want to come off too negative and I know multiple “downer” type of posts in a row don’t exactly scream inspirational or hopeful to those who are struggling. 

I always want to provide hope to you all so you know everything is going to be okay. I really believe that. Even with as bad a days as I’ve been having and everything I’ve been through that doesn’t even compare (to be honest,) I still believe I will be okay. I believe we all will… in one way or another. Each and every one of us will find our place. 

Part of what gives me hope is seeing other people share their “behind the scenes moments.” As so many of you know, I felt so isolated for years thinking I was the only one who struggled emotionally with my IBD. It was life changing for me to see that I wasn’t alone and I guess this is my way of showing you that if you’re in a bad place, I get it. And you don’t need to be all “ra-ra” with me. We all have our time but we all will survive this. We will get through the terrible times. 

My friend Meg said it best: we are a family. When one of us is down, we do our best to pick up the pieces and help each other. 

Thank you all for being part of my family. Thank you for your support always and especially as of late. I know I’ve been kind of a buzz kill. Hopefully that will change soon. 

I also want to thank my non IBD family for putting up with me and helping me get through each day. Those of you who send little thinking of you texts, thank you! They don’t go unnoticed even if it takes me a bit to respond. ❤️ 

  • LES EMsfc FM

    Hi Marisa. I love this post. This week I went for something similar.

    I have Systemic Lupus, Chonic Fatigue Syndrome, Fybromialgia, Sjögren Syndrome…

    I felt alone with my healthy problems since I found people on the net with similar situations (even with different illness).

    I try to share positive messages but I don’t hide the bad things (love your ‘behind the scene’ concept). I was so down last Sunday and Monday and tweeted negative lines twice but I didn’t explain the reasons.

    I had a huge suppport and love anyway. They didn’t mind what happened these days, and I wrote a post post for saying thank you to all of them.

    We pass through dark paths but we are not alone in this. And that is wonderful despite a hard life. I send you good vibes :)

  • Sheila Bergquist

    Marisa, all I can say (and I think it’s safe to say I speak for everyone) is that we all love you so much. And we all want to know when things are terrible for you and try to help in any way we can.Much love and big hugs to you.