The following was written by Stephen D…
As you would imagine, I have given this a bit of thought and if I were only to give one tip/piece of advice, it would be:
“Keep an IBD journal/diary.”
Granted I am a bit of a compulsive note taker, but keeping an IBD journal allows me to track a lot of information about various things that directly impact my Crohn’s Disease. The things I write about in my IBD journal include (but are not limited to) the following:
- What foods I have tried post-operative.
- Which foods affect my system or trigger a flare-up.
- Medications and their benefits or side-effects.
- Outcomes of appointments with medical people.
- My emotional and psychological state.
- Things I have tried that benefit my condition.
- Useful websites/online resources.
The list goes on and on. Aside from gathering a lot of useful data that can help with the management of my Crohn’s Disease, I often find it very therapeutic to just have a rant and get things down on paper. Possibly the biggest benefit for me personally, is that I can use this information (where appropriate) to help others.
Have you tried to keep an IBD journal/diary? How has it worked out for you? Do you have any advice for someone beginning one for the first time? Have other tips to share? Email me at Marisa.IBD@gmail.com